Your Child's Story

These personal pages are a way for you to share your child’s story. Once created you can share the page with friends and family to help raise awareness about MED13L. 

Pages can also be used to help raise funds for the MED13L Foundation. At this time your generous donations will go towards management of the website and spreading awareness to provide support to our MED13L families while we continue to network to locate future research collaborations.

Fill in the form below to begin creating your child’s personal page. Once submitted, we will begin creating your child’s page and personally reach out to you once it’s done. All information submitted will be processed within two weeks of being received.

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