Kamilya

Kamilya is a strong lady with an angel face!

Profile Type:

  • Family

|

Age Group:

|

Profile Created: April 28, 2024


Our Story

Kamilya is a third child and a happy daughter of Arsen & Assem. She lives in Kazakhstan, Nur-Sultan. She was diagnosed with MED13L when she was 2 years. Today she can walk and say three words “mama”, “papa” and “give”.

© 2025 The MED13L Foundation

|

Privacy Policy

|

Terms & Conditions

Site Search

Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!