Myla-Rose

Myla-Rose loves dancing, she does ballet and tap lessons and loves it so much!

Profile Type:

  • Family

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Age Group:

  • 5-10

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Profile Created: April 28, 2024


Our Story

Myla-Rose was born in January 2018, she was born with talipes in her right foot but was absolutely beautiful! When she got to the age of 1 we realised she was delayed in all areas, only just starting to sit up. She began walking just after her birthday and is classed as non-verbal although she does say a few words! She is such a happy little girl and loves Angelina ballerina!

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Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!