National MED13L Day

When will this Day be celebrated?  May 13th of each calendar year. What is National MED13L Day?  National MED13L Day celebrates those diagnosed with MED13L

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Rare Disease Day 2022

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Our MED13L Foundation will celebrate

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Battle of the Badges

Softball game to benefit MED13L Foundation. Food, 50/50, and shirts for sale. Come out for a great time for a great cause! Location: Walk Nicgorski

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