Rare Disease Day 2022

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Our MED13L Foundation will celebrate

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Battle of the Badges

Softball game to benefit MED13L Foundation. Food, 50/50, and shirts for sale. Come out for a great time for a great cause! Location: Walk Nicgorski

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Rare Disease Day Event

For the last two years the MED13L Foundation has participated in Rare Disease Day. Check out https://rarediseaseday.org/ to learn more about Rare Disease Day. MED13L

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Giving Tuesday

The MED13L Foundation will be participating in this event and we need your help! How can you help? When our foundation organizes the fundraiser, SHARE

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World MED13L Awareness Day is Officially May 13th!

MED13L Foundation Announces Global MED13L Day and Launches $1 million Fundraising Campaign Entrepreneurial patient advocacy group for rare disease makes strides towards CURE MED13L. Read More.

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