Come out to Citizens Bank Park and join MED13L Foundation family and friends for a night of fun and baseball! Date: Monday, April 25 Time:

Please join us September 18 for a day of golf and fun while we support such an amazing cause! Date: September 18, 2022 Location: Bello

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Our MED13L Foundation will celebrate

In collaboration withthe CSNK2A1, HIVEP2, MED13L, and SETBP1 communities, Simons Searchlight is excited to announce plans to host a joint family and research conference. We

Our friends at Simons Searchlight have announced their 2021 Virtual Family & Research Conference and you’re invited! Here’s what you can expect: Presentations for general

In collaboration withthe CSNK2A1, HIVEP2, MED13L, and SETBP1 communities, Simons Searchlight is excited to announce plans to host a joint family and research conference. We

Softball game to benefit MED13L Foundation. Food, 50/50, and shirts for sale. Come out for a great time for a great cause! Location: Walk Nicgorski

For the last two years the MED13L Foundation has participated in Rare Disease Day. Check out https://rarediseaseday.org/ to learn more about Rare Disease Day. MED13L

The MED13L Foundation will be participating in this event and we need your help! How can you help? When our foundation organizes the fundraiser, SHARE