Our next Community Zoom will be Sunday, January 28th @ 12:00 EST. During this Zoom our families will have the opportunity to meet Dr. Rachel

On Sunday, October 15 2023 @ 6:00 pm (EST) The MED13L Foundation presents: Caring for the Caregiver with Michelle Seaver, MA, MFT, MBA. We are

Location: Cracklewood Golf Glub18215 24 Mile RoadMacomb, MI 48042 Golf Package | $125/golfer, $500/team Don’t golf? Come for dinner only | $50 (dinner at the

When will this Day be celebrated?  May 13th of each calendar year. What is National MED13L Day?  National MED13L Day celebrates those diagnosed with MED13L

A group of MED13L parents and board members from the MED13L Foundation will be attending the 2023 Global Genes Rare Drug Development Symposium event in

Come out to Citizens Bank Park and join MED13L Foundation family and friends for a night of fun and baseball! Date: Monday, April 25 Time:

Please join us September 18 for a day of golf and fun while we support such an amazing cause! Date: September 18, 2022 Location: Bello

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Our MED13L Foundation will celebrate

In collaboration withthe CSNK2A1, HIVEP2, MED13L, and SETBP1 communities, Simons Searchlight is excited to announce plans to host a joint family and research conference. We

Our friends at Simons Searchlight have announced their 2021 Virtual Family & Research Conference and you’re invited! Here’s what you can expect: Presentations for general