Alexander

Fun fact: Wonderful Laugh and very loving

Profile Type:

  • Family

|

Age Group:

  • 5-10

|

Profile Created: May 6, 2024


Our Story

Diagnosed with Med 13L in mid 2022. We don’t really have a lot of information on his diagnosis. Alexander doesn’t speak. He has no heart issues. He does have Duane Syndrome in I think left eye. He also doesn’t eat solid foods but in very small amounts. So, he is bottle fed. He was in an Early Steps program but is now in Early Learning at an elementary school in Orange County, Florida. He is very social.

© 2025 The MED13L Foundation

|

Privacy Policy

|

Terms & Conditions

Site Search

Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!