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Naproxen Shown to Upregulate MED13L.
One step closer to a therapeutic treatment. Could it be this easy? We have a hit! Rarebase delivers. It’s not a home run, but a solid double from Rarebase! After…
Our Strength Is In Our Numbers
Friends, I wanted to take this opportunity to share our family’s MED13L story and express our profound gratitude for the MED13L Foundation and organizations like RARE-X that support the Foundation…
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Join us! World MED13L Syndrome Day 2023
Have you been wanting to get involved in the MED13L Foundation? Here is a great way! We are starting to plan for… World MED13L Syndrome Day – 2023 …and we…
December 2022 Office Hours
On December 6, 2022 Board Members Vanessa Dias and Katie Boychuck took some time to come into a zoom call and answer questions. It was a great success and we…
CURE MED13L Takes a Leap Forward
The Finding a Drug Discovery Partner (First) Edition of the Newsletter (10/17/21) Hello CURE MED13L Community! I’m Nick Seaver and this is the inaugural edition of the CURE MED13L newsletter. I can’t…
April 2023 Family Meet Up
Hello MED13L Families, The MED13L Foundation is coordinating an in-person Family Meet Up on Sunday April 30th, 2023 at the Adventure Aquarium in Camden, NJ at 11:30 am, with a 3:00…
The Road Forward
A week ago we hit a high point for the MED13L Foundation. The wonderful research team at Combined Brain completed their many month review of all things MED13L Syndrome and…