White Rolling Armchair Beside Table

Posted by: Vanessa Dias

On December 6, 2022 Board Members Vanessa Dias and Katie Boychuck took some time to come into a zoom call and answer questions. It was a great success and we look forward to organizing more of these in the future.

Vanessa Dias

Vanessa Dias

Vanessa is the Co-Director of CURE MED13L Initiative and has 20+ years of experience as a registered nurse, specializing in critical care and clinical coordination. Her youngest child, Elle, was diagnosed with MED13L at 14 months.

© 2025 The MED13L Foundation

|

Privacy Policy

|

Terms & Conditions

Site Search

Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!