Person Holding a Globe

Posted by: Nick Seaver

Have you been wanting to get involved in the MED13L Foundation?

Here is a great way! We are starting to plan for…

World MED13L Syndrome Day – 2023

…and we want YOU!

We are looking for International and US Regional Ambassadors to lead the way.

Please choose the day that works for you, date with the most votes will be the meeting day. Can’t make either day? No worries! Send us a message and we will be sure to set up an individual meeting to get you caught up.

This poll will be open until December 31st and we will be sending out reminders along the way!

Nick Seaver

Nick Seaver

Nick is the Co-Director of the CURE MED13L Initiative, which is dedicated to research and development towards medicines for MED13L carriers. He is the father of twin girls, one of whom has MED13L.