May is
MED13L Awareness Month
May is MED13L Awareness Month — a time to raise awareness, share stories, and fundraise for critical research all month long. At the heart of it is World MED13L Day, celebrated each year on May 13th — a powerful global moment of unity, action, and hope for the MED13L Syndrome community.
This year marks our most important World MED13L Day yet. The MED13L Foundation is in the process of issuing two research grants totaling over $300,000 to help answer parents’ questions about MED13L and better support our children and their futures. We can’t wait to share more details about these two grants this May.
We chose May 13th not just because it reflects the gene’s name (MED13L), but also because May is Apraxia Awareness Month. Apraxia of speech, delayed speech, or absent speech are among the most common challenges our children face. The 13th gives us the perfect date to spotlight our MED13L zebras — and May gives us the perfect month to raise our voices for kids who are still learning to use theirs.
Together, we are telling their stories, advancing science, and building the future they deserve.
This is what you are supporting.
Donate Today.
Why Your Donation Matters.
As parents, we share the same hopes—for answers, for progress, for brighter days ahead.
We’re raising $325,000 to fund two vital initiatives that could bring meaningful change for children with MED13L syndrome.
With your support, we move closer to the treatments our kids deserve—and the future they deserve, too.
Keep an eye on this page—updates are coming soon about these amazing new initiatives! In the meantime, dive into the research we’re already doing and see the progress we’re making together here.
Help Spread the Word!
Proud to support the cause? Let the world know! We’ve created a set of shareable images you can post on social media to celebrate your donation and encourage others to get involved. Click below to access the graphics on Google Drive.
