Have you been wanting to get involved in the MED13L Foundation? Here is a great way! We are starting to plan for… World MED13L Syndrome Day – 2023 …and we want YOU! We are looking for International and US Regional Ambassadors to lead the way. Please choose the day that works for you, date with…
On December 6, 2022 Board Members Vanessa Dias and Katie Boychuck took some time to come into a zoom call and answer questions. It was a great success and we look forward to organizing more of these in the future.
Hello MED13L Families, The MED13L Foundation is coordinating an in-person Family Meet Up on Sunday April 30th, 2023 at the Adventure Aquarium in Camden, NJ at 11:30 am, with a 3:00 pm pizza party. The MED13L foundation has agreed to cover the aquarium tickets for the MED13L individual + 1 family member. RSVP HERE for the Aquarium Family…
