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  • Katie Barry Boychuck

    • Board Chair

  • Vanessa Dias

    • Vice Chair

  • Nick Seaver

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  • Jenny Robertson

    • Secretary

  • Inon Shampanier

    • Board Member

  • Jake Wuest

    • Board Member

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Park Ridge, IL 60068

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Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!

Learn more