Vanessa is the Co-Director of the CURE MED13L Initiative research initiative. Vanessa has been a registered nurse for over 20 years working in various settings including critical care and clinical coordination. She lives in Westchester, NY with her husband and her three children. Her youngest child, Elle, was diagnosed at 14 months with MED13L. Since receiving her diagnosis, Vanessa has been on a mission to connect with the MED13L community in a way that fosters progress and hope for all individuals diagnosed with MED13L.