Katie Barry Boychuck has over a decade of corporate legal experience in various industries including nonprofit governance and financial reporting. Katie lives in Chicago with her husband Mike and her three sons Mac, Jack, and Collin. Collin was 15 mos old when the Boychuck family received his MED13L diagnosis. After receiving the diagnosis, Katie found the inspiring MED13L community and decided to shift her career to finding a cure. Curing rare diseases has always been a passion for Katie.

For several years, Katie supported and eventually served as the Chicago race director for Cupid’s Run, raising money for research to help end neurofibromatosis (NF). Currently she is the Director of Development Operations for the Foundation. Prior to joining the Board, Katie served as in house counsel to a real estate management and development company focusing on all aspects of commercial real estate, including acquisitions, dispositions, leasing, and financing. Katie received a J.D. from DePaul University and a B.A. in Liberal Arts and Sciences from the University of Illinois.