Simons Searchlight is an initiative that focuses on better understanding genetic neurodevelopmental conditions. It’s a research program designed to gather information from individuals who have rare genetic changes linked to these conditions, including autism and developmental delays. The program aims to provide families with resources and information, connect them with the research community, and promote the understanding of the impact of these genetic changes. Simons Searchlight collaborates with families, clinicians, and researchers to collect data, which includes medical history, developmental milestones, and current health information, to advance scientific knowledge and potentially lead to more effective treatments and supports.

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