RARE-X is a non-profit organization focused on accelerating the development of treatments and cures for rare diseases. They achieve this by leveraging technology to enable patient communities to securely collect and share their data with researchers and clinicians worldwide. Their approach is patient-centered, ensuring data contributors have ownership and control over their data. RARE-X emphasizes inclusivity in research and collaboration across stakeholders to drive progress in rare disease understanding and therapy development​​.

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