Help Accomplish Our Mission
Putting MED13L ON THE MAP
As the parent of a child with a MED13L mutation, we ask that you please put yourself and your child “on the map” by reaching out and letting us know you exist (even anonymously, if you prefer). You can submit their story or show us where you are on the map to connect to those that may be nearby.
Dylan and Logan, NJ
Molly & Julia, AZ
Bowen | Dallas, TX
Ruth | Washington DC, Maryland
The Williams Family | Houma, Louisiana
Makayla Stillwagon | Cuyahoga Falls, Ohio
Adeline | Saugerties, NY
Bryson | Harrisburg, PA
Maya | Miami, FL
Collin Boychuck | Park ridge, Il
Ashley | Burlington, NJ
Outside of the USA (larger map coming soon):
Spreading awareness is one of THE MOST IMPORTANT THINGS YOU CAN DO FOR YOUR CHILD, and it is the only way we will ever be able to advocate for new MED13L treatments and therapies.
Find a Cure!
Did you or your child just receive a new diagnosis of MED13L? If so, please know you are not alone!