Help Accomplish Our Mission

Putting MED13L ON THE MAP

As the parent of a child with a MED13L mutation, we ask that you please put yourself and your child “on the map” by reaching out and letting us know you exist (even anonymously, if you prefer). You can submit their story or show us where you are on the map to connect to those that may be nearby.

Dylan and Logan, NJ

TJ, DE

Brooklyn, AL

Maiya, NE

Ethan, TX

Taylor, KY

William, IL

Joey, TX

Luka, TX

Paris, MS

Max, OH

Molly & Julia, AZ

Laura, CA

Stephanie, TX

Leticia, Iowa
Jordan, UT
Madelynn, CA
Case, Wisconsin

Lindsay, Louisiana

Evan, TX

Owen, Wisconsin

Melissa, OH

Angel, CA

Liza, TX

Shauna, Wisconsin

Shannon, Missouri
Annalise, VA

Bowen, TX

Joe, MD

Manori, PA

Ruth, VA

Outside of the USA (larger map coming soon):

Spreading awareness is one of THE MOST IMPORTANT THINGS YOU CAN DO FOR YOUR CHILD, and it is the only way we will ever be able to advocate for new MED13L treatments and therapies.

Find a Cure!

Did you or your child just receive a new diagnosis of MED13L? If so, please know you are not alone!