MED13L Foundation to Launch Natural History Study of MED13L Syndrome with Boston Children’s Hospital BOSTON, May 5, 2025 — The MED13L Foundation today announced a nearly $250,000 grant to help launch an innovative natural history study at Boston Children’s Hospital’s Rosamund Stone Zander Translational Neuroscience Center (RSZ TNC). The MED13L Syndrome Investigation of Natural History…
The Finding a Drug Discovery Partner (First) Edition of the Newsletter (10/17/21) Hello CURE MED13L Community! I’m Nick Seaver and this is the inaugural edition of the CURE MED13L newsletter. I can’t tell you how thrilled I am to be kicking this off. Since the MED13L Family and Research Virtual Meeting in August, we have made tremendous strides pushing…
A week ago we hit a high point for the MED13L Foundation. The wonderful research team at Combined Brain completed their many month review of all things MED13L Syndrome and presented their strategic plan. It gives a super helpful roadmap for the things we want to do in order to set ourselves up for clinical…
