Global Genes is a leading non-profit organization advocating for the rare disease community globally. Founded in 2008, their mission is to connect, empower, and inspire the rare disease community. They focus on providing patients, families, and caregivers with the educational tools and resources they need to live their best lives. Their commitment includes supporting research and development for rare diseases, raising public awareness, and fostering a supportive community. Global Genes collaborates with various stakeholders, including healthcare professionals, researchers, and policymakers, to drive innovation and solutions for the challenges faced by those living with rare diseases.

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