Media Submission – US Residents


U.S. residents

Share your journey with MED13L

Upload photos of yourself or your loved one to help us tell the MED13L story across awareness, fundraising, and research campaigns. You decide how the photos appear, and you can withdraw your permission at any time.

This is the release for families who live in the United States. If you live outside the U.S., please use the International Media Release form instead.
Test mode is on. Submissions are not being sent yet. The Foundation team needs to add the upload link before this form goes live.

About you

We use this to reach you and to keep a record of your permission.

Enter your full name.
Enter a valid email address.
Choose your relationship to the person shown.

About the person in the photos

All fields here are optional. Share only what you are comfortable sharing.

Leave blank to stay anonymous.

Upload photos

Your photos go into the Foundation’s secure, access controlled Google Drive. Only authorized Foundation staff can view them.

Drag photos here, or click to browse
JPG, PNG, WEBP, or HEIC. Up to 15 MB each.
Add at least one photo.

Add a caption or story (optional)

A sentence or two about the person shown, or a caption you would like us to consider.

Your permissions

These choices control how the Foundation may use the photos.

Confirm you are the person shown or their parent or legal guardian.
Agree to the release to continue.
If you leave this unchecked, we will not publish the name.

Photo and Media Release

Please read this before you sign.

By submitting this form, I confirm that I am the adult shown in the photographs I am uploading, or that I am the parent or legal guardian of the person shown, and that I have the authority to grant this release.

I grant The MED13L Foundation, a nonprofit organization, and its staff, volunteers, agents, and authorized partners permission to use, reproduce, edit, crop, adapt, publish, and distribute the photographs I submit, along with any caption or story I provide and the likeness of the person shown.

I understand these photographs may appear in Foundation materials that support awareness, education, fundraising, and research. These materials include the Foundation website, social media accounts, printed publications, newsletters, presentations, grant applications, and reports to funders and partners.

I understand that using these photographs in connection with The MED13L Foundation may identify the person shown as someone affected by MED13L syndrome or connected to the MED13L community, and that this information may become publicly visible. I consent to this use.

I understand that I will receive no payment for the use of these photographs, now or at any time in the future.

I keep ownership of my original photographs. This release grants The MED13L Foundation a nonexclusive, royalty-free, worldwide license to use them for the purposes described above.

I understand this permission stays in effect until I withdraw it. I may withdraw my permission at any time by emailing the Foundation at the address listed below. Withdrawal stops future use. It cannot recall materials that were already printed, published, or distributed before the Foundation received my request.

I release The MED13L Foundation, and its staff, volunteers, agents, and authorized partners, from any claim, demand, or liability that arises from the authorized use of these photographs, including any claim related to editing, cropping, or the setting in which the photographs appear.

I confirm that the information I have provided is accurate, and that I submit these photographs voluntarily.

Questions or withdrawal requests: social@med13l.org. The MED13L Foundation, 14 Main Street, Park Ridge, IL 60068.

Sign and submit

Typing your name below acts as your signature.

Type your name to sign.

Thank you

The Foundation received your photos and your signed release.

© 2025 The MED13L Foundation

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