Our Story

We learned about Eymen’s disease at the age of 7. He became the first registered person with med13l syndrome in Turkey. Since he was 2.5 years old, he received special training and had several surgeries. And he still continues his training regularly. His speech still continues like a 3-year-old child. He continues to a speech and language therapist. They have flat flat feet on their feet. For this, he goes to the Physiotherapist. He is a very cheerful and sociable child and we love him very much.