MED13L Foundation to Launch Natural History Study of MED13L Syndrome with Boston Children’s Hospital As featured in Brain & Life Magazine BOSTON, May 5, 2025 — The MED13L Foundation today announced a nearly $250,000 grant to help launch an innovative natural history study at Boston Children’s Hospital’s Rosamund Stone Zander Translational Neuroscience Center (RSZ TNC)….
The Finding a Drug Discovery Partner (First) Edition of the Newsletter (10/17/21) Hello CURE MED13L Community! I’m Nick Seaver and this is the inaugural edition of the CURE MED13L newsletter. I can’t tell you how thrilled I am to be kicking this off. Since the MED13L Family and Research Virtual Meeting in August, we have made tremendous strides pushing…
A week ago we hit a high point for the MED13L Foundation. The wonderful research team at Combined Brain completed their many month review of all things MED13L Syndrome and presented their strategic plan. It gives a super helpful roadmap for the things we want to do in order to set ourselves up for clinical…
