July 9 – July 13, 2025

2025 Research & Family Meetup

Where Inclusion is the Vibe!

Register to Attend

Event Info

Date & Time

  • July 9 – July 13, 2025
  • Click Here to view the tentative event schedule.

Location & Venue

  • Waltham, MA
  • Embassy Suites by Hilton Boston Waltham
    Waltham, MA 02451

Price & Details

  • We offer free admission for children aged 10 and under, and early bird family registration fees are capped at $250 to ensure that families can attend and engage without financial barriers.
  • If you fundraise $1,000 by May 1, 2025, and notify us, we will refund your family’s registration fee.
  • Your fee includes: meals, conference t-shirts, facility use, Friday night party, and research support.

Registration 👇

Full Event Details

Have questions? Contact us.

  • Date: July 9th to 13th
  • Theme: “Inclusion is the Vibe!”
  • Early Bird Prices: End April 30th
  • Discounted Room Rates: Link
  • Tentative Schedule: Full Agenda to Follow
  • Research Day (Friday, July 11th)
  • Family Day (Saturday, July 12th)
    • Accessible scientific insights
    • Family experiences: Workshops, ‘Ask a Pharmacist’ session, MED13L Foundation session, Sibling session
  • Additional Events
    • Research Opportunity: July 9th – 13th (Details to follow)
    • Family Conference Kick-off: July 10th, 5:30 PM – 7:30 PM
  • Admission: Free for children aged 10 and under
  • Early Bird Family Registration: $250 cap
  • Fundraising Opportunity: Fundraise $1,000 by May 1, 2025, for a registration fee refund
  • Meals: Breakfast, lunch, and dinner on Friday; breakfast and lunch on Saturday
  • Conference T-shirt
  • Facility Costs
  • Friday Night Party at City Point, Waltham
  • Research Support: $15,000 for travel grants and biorepository efforts
  • Call for Donations: Contributions welcome to offset event costs
  • Impact of Donations: Further MED13L research and support initiatives
  • Fundraising Refund Offer: Notify us of $1,000 fundraised between Jan 23, 2025 and May 1, 2025, for a registration fee return