Midwest MED13L Family Meetup
Component Brewery South 1st Street 2018, Milwaukee, WI, United StatesJoin our Midwest MED13L families at Component Brewery on Saturday, March 8th from 12 PM - 3 PM, for a special gathering where community and awareness come together. Experience the exclusive release of “Zebra Hop,” a collaborative beer created to unite The MED13L Foundation families and support rare disease awareness. This unique brew represents the advances in medicine and the continuous pursuit of finding cures for rare diseases, using cutting-edge brewing products and techniques to symbolize innovation and hope.
The event celebrates the collaborative spirit of the brewing industry and the shared commitment to raise awareness for the one in ten individuals living with a rare disease. Come be part of this inspiring experience, connect with other families, and enjoy a drink that toasts to progress and unity in the rare disease community. We look forward to seeing you there!
2025 Research & Family Meetup
Embassy Suites by Hilton Boston Waltham Embassy Suites by Hilton Boston Waltham, Waltham, MA, United StatesMED13L Family & Research Meet-up; We are excited to announce our upcoming MED13L Family and Research Meet-up in Boston from July 9th - 13th! This event will bring together patients, families, researchers, and healthcare professionals to share the latest developments, research, and support within our community.
Discounted room rates available through our room block.
4th Annual MED13L Golf Tournament
Cracklewood Golf Club 24 Mile Road, Macomb, MI, United States8AM SHOTGUN START, 4-PERSON SCRAMBLE REGISTRATION: $500/TEAM OR $150/PLAYER Registration fee includes 18 holes of golf, cart, drink/food tickets, & a buffet lunch after the round. 100% of proceeds benefit...
