PAST EVENT: July 9 – July 13, 2025

2025 Research & Family Meetup

Where Inclusion is the Vibe!

Check out the agenda and visit https://www.youtube.com/@med13lfoundation to view recordings of the presentations.

View Event Schedule

Event Info

Date & Time

Location & Venue

  • Waltham, MA
  • Embassy Suites by Hilton Boston Waltham
    Waltham, MA 02451. Click HERE to book your hotel.

Price & Details

  • We offer free admission for children aged 10 and under, and early bird family registration fees are capped at $250 to ensure that families can attend and engage without financial barriers.
  • If you fundraise $1,000 by May 1, 2025, and notify us, we will refund your family’s registration fee.
  • Your fee includes: meals, conference t-shirts, facility use, Friday night party, and research support.

Registration 👇

Registration is now closed due to max capacity being reached. We look forward to gathering with everyone in July!

Full Event Details

Have questions? Contact us.

  • Date: July 9th to 13th
  • Theme: “Inclusion is the Vibe!”
  • Early Bird Prices: End April 30th
  • Discounted Room Rates: Link
  • Tentative Schedule: Full Agenda to Follow
  • Research Day (Friday, July 11th)
  • Family Day (Saturday, July 12th)
    • Accessible scientific insights
    • Family experiences: Workshops, ‘Ask a Pharmacist’ session, MED13L Foundation session, Sibling session
  • Additional Events
    • Research Opportunity: July 9th – 13th (Details to follow)
    • Family Conference Kick-off: July 10th, 5:30 PM – 7:30 PM
  • Admission: Free for children aged 10 and under
  • Early Bird Family Registration: $250 cap
  • Fundraising Opportunity: Fundraise $1,000 by May 1, 2025, for a registration fee refund
  • Meals: Breakfast, lunch, and dinner on Friday; breakfast and lunch on Saturday
  • Conference T-shirt
  • Facility Costs
  • Friday Night Party at Craft Food Hall – City Point, Waltham
  • Research Support: $15,000 for travel grants and biorepository efforts
  • Call for Donations: Contributions welcome to offset event costs
  • Impact of Donations: Further MED13L research and support initiatives
  • Fundraising Refund Offer: Notify us of $1,000 fundraised between Jan 23, 2025 and May 1, 2025, for a registration fee return
Donate Today

Our Foundation

Our Story

Mission & Values

Board of Trustees

Scientific Advisory Board

About MED13L

What is MED13L?

Symptoms

Medical Care

Facts & FAQ

Resources

Advocacy

Get Involved

Upcoming Events

Fundraisers

Recent News

Research Opportunities

Contact Us

MED13L Foundation
14 Main Street
Park Ridge, IL 60068

© 2025 The MED13L Foundation

|

Privacy Policy

|

Terms & Conditions

Site Search