Brain & Life Magazine: How Families Are Leading the Charge in Rare Disease Advocacy
A recent article in Brain & Life highlights the powerful role of families in rare disease advocacy—including the efforts of MED13L Syndrome parents. The piece showcases how grassroots advocacy drives research and awareness for rare neurodevelopmental disorders. While the article covers multiple conditions, it underscores a critical truth: families are the catalyst for progress. At the MED13L Foundation, we see…
