Inon Shampanier

Inon is a MED13L parent and a film director, living in Los Angeles with his wife Natalie and their children Ilan, Adam and Mali. Ilan received his MED13L-syndrome diagnosis in 2014, when he was 2 years old. The diagnosis spurred Inon on a journey to engage researchers and find therapeutic interventions for his son, but at the time MED13L research was still in its infancy. Several years later, with the formation of the MED13L Foundation, Inon found a passionate team of driven parents who were equally committed to finding a cure for MED13L, and to building a global MED13L community. 

As a film director, Inon is best known for his mental health drama Paper Spiders, which he co-wrote with his wife Natalie. Inon is a graduate of the University of Southern California’s School of Cinematic Arts.