Advocacy

Request a Custom Fundraiser Page

Contact Name (Fundraiser host)(Required)
Rest assured, your story will always be featured respectfully. We may edit the wording to ensure a consistent campaign format while preserving your heartfelt message. We will allow you to preview the web page first and get approval prior to finalizing.
Max. file size: 50 MB.

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Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!