Empowering MED13L Families
Join Our Advocacy Movement
Each of us plays a pivotal role in advocacy for our loved ones with MED13L. It’s imperative we harness our collective voice to amplify awareness and engagement.
Your participation is the bedrock upon which we construct a robust support network, essential not just for you but for all MED13L families.
How to Promote MED13L-RND Awareness & Knowledge
Any effort counts, here are some ways to get started.
Sport MED13L Pride
Wear MED13L gear to spark conversations about the condition.
Educate Healthcare Providers
Inform your pediatricians about MED13L, helping them recognize it.
Connect & Share Online
Share our journey on social media to widen the circle of awareness.
Spread the Word
Share our website with your network to educate and engage the community.
Show Your Support
Update your Facebook profile with our MED13L frame to show solidarity.
Partner With Us
Introduce us to businesses interested in sponsoring our mission.
Take the Next Step
Interested in Hosting a Fundraiser?
Hosting a fundraiser can be a powerful way to support the MED13L Foundation’s mission. Whether you plan a community bake sale, a charity run, or a silent auction, your efforts directly contribute to advancing research and providing support for families. We are here to help guide you through the process with resources, ideas, and the necessary tax information to make your event a success. Rally your friends, family, and community to join in a cause that creates lasting impact.