Join us! World MED13L Syndrome Day 2023


Have you been wanting to get involved in the MED13L Foundation?

Here is a great way! We are starting to plan for…

World MED13L Syndrome Day – 2023

…and we want YOU!

We are looking for International and US Regional Ambassadors to lead the way.

Please choose the day that works for you, date with the most votes will be the meeting day. Can’t make either day? No worries! Send us a message and we will be sure to set up an individual meeting to get you caught up.

This poll will be open until December 31st and we will be sending out reminders along the way!

Empower our community.

Share your story in the Rare-X natural history database. Together, let's illuminate the path to understanding and advancing research for MED13L Related Neurodevelopmental Disabilities.

Our goal is 100% community participation for a brighter future for our children.