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The MED13L Foundation is a non-profit organization created by parents of children that have MED13L syndrome. We are an organization run entirely by volunteers and our goal is to connect families around the world. Any questions please fill out the form below or e-mail us directly at: med13lfoundation@gmail.com
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MED13L Foundation Announces Global MED13L Day and Launches $1 million Fundraising Campaign Entrepreneurial patient advocacy group for rare disease makes strides towards CURE MED13L. Read More.
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