Phil Buta
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Executive Director
Phil joined the MED13L Foundation because he was moved by the strength and determination of the families who make up this community. He focuses on supporting families, building partnerships, and helping drive the research needed to better understand MED13L Syndrome and improve the lives of those affected by it.
Phil has worked in nonprofit leadership for more than 20 years, with roles at Catholic Charities of the Archdiocese of Chicago, the Pritzker Military Museum & Library, and Healthcare Alternative Systems. Much of his career has been spent helping organizations grow, strengthening donor relationships, and advancing programs that make a real impact.
He holds a BA from the University of Illinois and an MA from Michigan State University, and he is a Certified Fund Raising Executive (CFRE). Phil is proud to be part of the MED13L Foundation and to support the work being done on behalf of families and individuals living with MED13L Syndrome.
