Every kind of movement counts.

On October 15, the MED13L community strides together, and we’re hoping you’ll be part of it. Walking, rolling, running, dancing, therapy steps, and stroller miles all move us forward. Whatever movement looks like for your family, it counts here. We’re moving to raise $20,000 for MED13L research, and your gift is what makes that research possible.

Why we’re moving

Could mitochondria hold a clue to treating MED13L Syndrome? That’s the question our next study chases. Researchers have found evidence of mitochondrial dysfunction in MED13L patient-derived cells, and the next step is to study patient-derived brain cells to understand what’s happening and look for treatments.

What your gift funds

Your support helps the research team:

  • Study how mitochondria work in MED13L brain cells
  • Identify pathways that could be targeted
  • Screen existing medicines and possible new treatments in the lab
  • Turn an early scientific clue into a real research opportunity

This is how a small community moves the science forward, one gift at a time.

How to join

Registering takes about two minutes. Start your own fundraising page, then invite family and friends to sponsor you. The system sends your pledge requests for you and lets people give securely by card, so you can rally your people from anywhere.



Not fundraising this year? You can still move things forward. DONATE

Move for Mito. Fund the research. Help change what’s possible for the MED13L community.


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Research & Family Meetup

Denver, Colorado, December 4th, 2026. This December, MED13L families will gather in person at the Grand Hyatt Denver. The day brings our community together around the latest MED13L research and the chance to spend real time with one another. Early bird pricing available!