Midwest MED13L Family Meetup
March 8, 2025 @ 12:00 pm - 3:00 pm
Join our Midwest MED13L families at Component Brewery on Saturday, March 8th, from 12 PM to 3 PM for a special gathering where community and awareness come together.
Discover the exclusive release of “Zebra Hop,” a one-of-a-kind collaborative beer created to unite The MED13L Foundation families and support rare disease awareness. This unique brew embodies the advances in medicine and the ongoing pursuit of cures for rare diseases, crafted with innovative brewing techniques that symbolize hope and progress.
Celebrate the collaborative spirit of the brewing industry and the shared commitment to raising awareness for the one in ten individuals living with a rare disease. Be part of this inspiring experience, connect with other families, and enjoy a drink that toasts to progress and unity in the rare disease community. We can’t wait to share this meaningful day with you!