Calendar of Events
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Giving Tuesday
This Giving Tuesday, we invite you to make a difference for our rare MED13L warriors. Every donation helps us advance research, deepen our understanding of MED13L Syndrome, and work toward life-changing therapies and, ultimately, a cure.
Your support fuels hope, empowers families, and drives the science needed to improve the lives of our loved ones living with MED13L. Every dollar counts, and together, we can create a better, brighter future for our rare children.
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AES Annual Meeting
Brings together healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy. https://aesnet.org/AES-annual-meeting