Events

Join our Midwest MED13L families at Component Brewery on Saturday, March 8th from 12 PM - 3 PM, for a special gathering where community and awareness come together. Experience the exclusive release of “Zebra Hop,” a collaborative beer created to unite The MED13L Foundation families and support rare disease awareness. This unique brew represents the advances in medicine and the continuous pursuit of finding cures for rare diseases, using cutting-edge brewing products and techniques to symbolize innovation and hope.

The event celebrates the collaborative spirit of the brewing industry and the shared commitment to raise awareness for the one in ten individuals living with a rare disease. Come be part of this inspiring experience, connect with other families, and enjoy a drink that toasts to progress and unity in the rare disease community. We look forward to seeing you there!