What is This?

The MED13L Foundation is in the process of building a member directory to enable our community to network and connect with each other. When the directory launches, each member will have a profile page that share’s their story. The form below is provided to share your story with us in advance so we can set your profile up for you.

Who is This For?

Anyone who has been impacted by MED13L. Your experiences hold the potential to profoundly benefit newly diagnosed families, individuals in search of answers, and healthcare professionals eager to deepen their understanding of those they care for.

By considering the sharing of your journey, you contribute to guiding others along this challenging path.

Furthermore, expressing your emotions through writing can be a therapeutic process for you. Your words have the power to shine as a beacon of hope and comprehension within the MED13L community.

These questions are designed as a framework to shape your narrative. Please respond to the questions that resonate with your story.

Please Note: Formatting edits to your responses may be made to ensure proper formatting for our website. Rest assured, your message will remain unchanged.

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