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Menu
Home
What is MED13L
Scientific Advisory Board
Board of Trustees
News
Our Mission
For Families
Our Stories
MED13L Family Map
Submit Your Story
Fundraisers
Upcoming Events
Spread Awareness
MED13L Day Apparel
Contact Us
Donate to Cure MED13L
Donate to Support Website
Meet Kamilya
Meet Kamilya
Kamilya is a strong lady with an angel face!
Kamilya is a third child and a happy daughter of Arsen & Assem. She lives in Kazakhstan, Nur-Sultan. She was diagnosed with MED13L when she was 2 years. Today she can walk and say three words “mama”, “papa” and “give”.
Share Kamilya's Story