Donations can be made to: MED13L Foundation, PO BOX 283, Barrington, NJ 08007
Rare Disease Day Event
For the last two years the MED13L Foundation has participated in Rare Disease Day. Check out https://rarediseaseday.org/ to learn more about Rare Disease Day.
MED13L Families a super easy way to get involved is to Show Your Rare.
#ShowYourRare is the interactive social media campaign for Rare Disease Day. You can get involved during the month of February by painting your face and sharing a photo using the hashtag #ShowYourRare in solidarity with people across the world who are living with a rare disease.
Location and Date TBD | Additional MED13L event information to follow.