In collaboration withthe CSNK2A1, HIVEP2, MED13L, and SETBP1 communities, Simons Searchlight is excited to announce plans to host a joint family and research conference. We

Softball game to benefit MED13L Foundation. Food, 50/50, and shirts for sale. Come out for a great time for a great cause! Location: Walk Nicgorski

For the last two years the MED13L Foundation has participated in Rare Disease Day. Check out https://rarediseaseday.org/ to learn more about Rare Disease Day. MED13L

The MED13L Foundation will be participating in this event and we need your help! How can you help? When our foundation organizes the fundraiser, SHARE