MED13L Goes to the Aquarium
A group of MED13L parents and board members from the MED13L Foundation will be attending the 2023 Global Genes Rare Drug Development Symposium event in Philadelphia, PA May 1st – May 3rd, to further our undertsanding about therapy development and engage in networking opportunities. The link is in the comments if any of our community members have interest in attending.
In addition, some of our MED13L families have decided to have a family meet up on Sunday, April 30th at the Adventure Aquarium in Camden, NJ at 11:30AM (entry to aquarium) witih a 3:00pm pizza party.
If any of our families are interested in meeting up with us please email firstname.lastname@example.org for more information. The MED13L foundation has agreed to cover the aquarium tickets for the MED13L individual +1 family member. RSVP HERE
ADDRESS: Adventure Aquarium, 1 Riverside Dr, Camden, NJ 08103